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<dc:title xml:lang="fr">La "santé à tout prix" à l'épreuve de l'éthique : tenants et aboutissants d'un mythe moderne</dc:title>
<dcterms:alternative xml:lang="en">“Health at any price” test of ethics : ins and outs of a modern myth</dcterms:alternative>
<dc:subject xml:lang="fr">Accompagnement</dc:subject>
<dc:subject xml:lang="fr">Dépistage génétique</dc:subject>
<dc:subject xml:lang="fr">Ethique de la parole</dc:subject>
<dc:subject xml:lang="fr">Ethique du soin</dc:subject>
<dc:subject xml:lang="fr">Groupe primaire éphémère</dc:subject>
<dc:subject xml:lang="fr">Rite de passage</dc:subject>
<dc:subject xml:lang="fr">Société médicalisée</dc:subject>
<dc:subject xml:lang="fr">Vulnérabilité</dc:subject>
<dc:subject xml:lang="en">Accompaniment</dc:subject>
<dc:subject xml:lang="en">Genetic testing</dc:subject>
<dc:subject xml:lang="en">Ethics of speech</dc:subject>
<dc:subject xml:lang="en">Ethics of care</dc:subject>
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<dc:subject xml:lang="en">Rite of passage</dc:subject>
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<dcterms:abstract xml:lang="fr">La thématique de recherche est d’analyser les tenants et les aboutissants du mythe moderne de santé parfaite via les démarches socio-anthropologique, philosophique et théologico-religieuse, afin de saisir sa problématique éthique. Examiner les transformations des pratiques thérapeutiques a demandé de retranscrire d’abord, sous un mode théorique, les principes qui sont aux fondements de l’exigence sanitaire pour étudier ensuite des expériences ad hoc. Aussi, supposé incarner cette idéologie, le dépistage systématique néonatal de la mucoviscidose relié aux centres de suivi génétique a été la base empirique d’un questionnement éthique spécifique, comme la responsabilité de l’homme face à la vulnérabilité et à la finitude humaine. Orientée par une éthique de la parole suggérant la création d’espaces de réflexion d’où émane une pensée créative, le concept de rite de passage - doté de sa dynamique d’accompagnement - apporte des indications sur la fonction d’une éthique du soin déterminée.</dcterms:abstract>
<dcterms:abstract xml:lang="en">The topic of research is to analyze the ins and outs of modern myth of perfect health through socio-anthropological approaches, philosophical and theological-religious to grasp its ethical problems. Examining changes in treatment practices needed to transcribe first, from a theoretical mode, the principles are the foundations of sanitary requirement then consider ad hoc experiments. Also supposed to embody this ideology, systematic neonatal screening for cystic fibrosis related centers of genetic monitoring was the empirical basis for an ethical questioning sui generis, as the responsibility of the man facing the vulnerability and human finitude. Guided by an ethic of speech suggesting ultimately creating spaces for reflection where creative thinking follows the concept of “rite of passage" - with its accompanying dynamics - provides indications on reality based an ethic of care determined.</dcterms:abstract>
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