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<dc:title xml:lang="fr">Les pratiques sédatives en unités de soins palliatifs, entre travail du care et négociation</dc:title>
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<dc:subject xml:lang="fr">Sédation profonde et continue jusqu’au décès</dc:subject>
<dc:subject xml:lang="fr">Sédation proportionnée</dc:subject>
<dc:subject xml:lang="fr">Soins palliatifs</dc:subject>
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<dc:subject xml:lang="fr">Éthique</dc:subject>
<dc:subject xml:lang="en">Continuous deep sedation until death</dc:subject>
<dc:subject xml:lang="en">Proportionate sedation</dc:subject>
<dc:subject xml:lang="en">Proportionate sedation</dc:subject>
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<tef:elementdEntree autoriteExterne="028679717" autoriteSource="Sudoc">Soins en phase terminale -- Aspect moral</tef:elementdEntree>
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<dcterms:abstract xml:lang="fr">Quels sont les différentes formes de la sédation en unité de soins palliatifs ? Comment les sédations sont-elles négociées entre les soignants, le patient et ses proches ? Qu’est-ce que l’usage du Midazolam et sa négociation nous dit du travail en unité de soins palliatifs en France ? Cette thèse repose sur une enquête qualitative menée auprès de quatre structures de soins palliatifs différentes. Le travail s’appuie sur des observations directes et indirectes au sein des structures, le suivi des évolutions dans les doses de Midazolam pour 42 patients, ainsi que soixante entretiens semi-directifs. L'analyse des matériaux montre l’existence de huit usages du Midazolam, dont cinq pratiques sédatives. Les entretiens révèlent que le travail en soins palliatifs vise notamment à (re)socialiser la fin de vie. Cette visée entre en contradiction avec la mise en place d’une sédation profonde et continue jusqu’au décès, ce qui amène parfois les équipes à préférer une sédation plus progressive.</dcterms:abstract>
<dcterms:abstract xml:lang="en">What are the different type of sedation in palliative care units ? How caregivers, patients and relatives negociate any kind of sedation ? What are uses of Midazolam and its negociation saying about the work in palliative care units in France ? This thesis is based on a qualitative survey, conducted among four palliative care structures. The work is based on direct and undirect observations, tracking Midazolam doses progression for 42 patients, and sixty semi-structured interviews. Materials analysis show eight Midazolam uses and among them, five sedations types. Semi-structured interviews show that palliative care work seek notably end of life (re)socialisation. Yet, there is a contradiction between this goal and the implementation of continuous deep sedation until death. Therefore, caregivers sometimes prefer a more progressive form of sedation.</dcterms:abstract>
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