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<dc:title xml:lang="fr">Conceptualisation de l’incertitude en hématologie : entre espoir et obstination déraisonnable ? : une analyse phénoménologique interprétative de 12 entretiens auprès de soignants</dc:title>
<dcterms:alternative xml:lang="en">Conceptualizing uncertainty in hematology : between hope and unreasonable obstinacy ? : an interpretative phenomenological analysis of 12 interviews with caregivers</dcterms:alternative>
<dc:subject xml:lang="fr">Incertitude</dc:subject>
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<dc:subject xml:lang="fr">Hématologie</dc:subject>
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<dc:subject xml:lang="en">Hope</dc:subject>
<dc:subject xml:lang="en">Hematology</dc:subject>
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<dcterms:abstract xml:lang="fr">Notre recherche s’intéresse aux soignants qui accompagnent les patients atteints de leucémie aiguë. La question de l’incertitude est centrale. Quels sont les effets de l’incertitude pronostique sur la relation thérapeutique. Une analyse phénoménologique interprétative de 12 entretiens de recherche avec des soignantes permet de répondre à notre hypothèse principale. Elles sont partagées face à l’incertitude. La nécessité absolue de croire à l’efficacité des traitements et le déni de l’échec alterne avec une désillusion totale lorsque la rémission n’est pas obtenue. La perte de sens du travail est proportionnelle à l’immaturité de leur investissement affectif. Les mouvements psychiques non conscientisés des soignantes limitent la relation thérapeutique. Nos résultats montrent que les services hospitaliers doivent considérer les défenses inconscientes des soignants. Des groupes d’analyse des pratiques pourraient améliorer la qualité de vie au travail et la relation thérapeutique avec les patients.</dcterms:abstract>
<dcterms:abstract xml:lang="en">Our research focuses on the caregivers who accompany patients with acute leukemia. The issue of uncertainty is central. What are the effects of prognostic uncertainty on the therapeutic relationship ? An interpretative phenomenological analysis of 12 research interviews with caregivers allows us to answer our main hypothesis. They are divided in the face of uncertainty. The absolute need to believe in the effectiveness of treatments and the denial of failure alternates with total disillusionment when remission is not achieved. The loss of meaning in the work is proportional to the immaturity of their emotional investment. The unaware psychic movements of the carers limit the therapeutic relationship. Our results show that hospital services must consider the unconscious defenses of the carers. Practice analysis groups could improve the quality of work-life and the therapeutic relationship with patients.</dcterms:abstract>
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