<?xml version="1.0" encoding="UTF-8"?><mets:mets xmlns:mets="http://www.loc.gov/METS/" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:dcterms="http://purl.org/dc/terms/" xmlns:mads="http://www.loc.gov/mads/" xmlns:metsRights="http://cosimo.stanford.edu/sdr/metsrights/" xmlns:suj="http://www.theses.fr/namespace/sujets" xmlns:tef="http://www.abes.fr/abes/documents/tef" xmlns:tefextension="http://www.abes.fr/abes/documents/tefextension" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.loc.gov/METS/ http://www.abes.fr/abes/documents/tef/recommandation/tef_schemas.xsd">
<mets:metsHdr CREATEDATE="2022-05-25T11:08:34" ID="ABES.STAR.THESE_183880.METS_HEADER" LASTMODDATE="2025-04-17T03:15:00Z" RECORDSTATUS="valide">
<mets:agent ROLE="CREATOR">
<mets:name/>
<mets:note>Note</mets:note>
</mets:agent>
<mets:agent ROLE="DISSEMINATOR">
<mets:name>ABES</mets:name>
</mets:agent>
<mets:altRecordID ID="ABES.STAR.THESE_183880.METS_HEADER.ALTERNATE" TYPE=""/>
</mets:metsHdr>
<mets:dmdSec ID="ABES.STAR.THESE_183880.DESCRIPTION_BIBLIOGRAPHIQUE">
<mets:mdWrap MDTYPE="OTHER" OTHERMDTYPE="tef_desc_these">
<mets:xmlData>
<tef:thesisRecord>
<dc:title xml:lang="fr">Configuration des relations de soin et arènes d’action : enfants, parents et professionnels face au Diabète de type 1</dc:title>
<dcterms:alternative xml:lang="en">Configuration of care relationships and arenas of action : children, parents and professionals facing Type 1 Diabetes</dcterms:alternative>
<dc:subject xml:lang="fr">Enfance</dc:subject>
<dc:subject xml:lang="fr">Maladie chronique</dc:subject>
<dc:subject xml:lang="fr">Diabète de type 1</dc:subject>
<dc:subject xml:lang="fr">Relation de soin</dc:subject>
<dc:subject xml:lang="fr">Configuration</dc:subject>
<dc:subject xml:lang="fr">Arène d’action</dc:subject>
<dc:subject xml:lang="fr">Rapports intergénérationnels</dc:subject>
<dc:subject xml:lang="fr">Famille</dc:subject>
<dc:subject xml:lang="fr">Hôpital</dc:subject>
<dc:subject xml:lang="fr">Pédiatrie</dc:subject>
<dc:subject xml:lang="en">Childhood</dc:subject>
<dc:subject xml:lang="en">Chronic illness</dc:subject>
<dc:subject xml:lang="en">Type 1 diabetes</dc:subject>
<dc:subject xml:lang="en">Care relationship</dc:subject>
<dc:subject xml:lang="en">Configuration</dc:subject>
<dc:subject xml:lang="en">Arenas of action</dc:subject>
<dc:subject xml:lang="en">Intergenerational relationships</dc:subject>
<dc:subject xml:lang="en">Family</dc:subject>
<dc:subject xml:lang="en">Hospital</dc:subject>
<dc:subject xml:lang="en">Paediatrics</dc:subject>
<dc:subject xsi:type="dcterms:DDC">306.461</dc:subject>
<tef:sujetRameau xml:lang="fr">
<tef:vedetteRameauNomCommun>
<tef:elementdEntree autoriteExterne="031478778" autoriteSource="Sudoc">Enfants diabétiques</tef:elementdEntree>
</tef:vedetteRameauNomCommun>
<tef:vedetteRameauNomCommun>
<tef:elementdEntree autoriteExterne="030328993" autoriteSource="Sudoc">Diabète insulinodépendant</tef:elementdEntree>
<tef:subdivision autoriteExterne="16719402X" autoriteSource="Sudoc" type="subdivisionDeSujet">Chez l'enfant</tef:subdivision>
<tef:subdivision autoriteExterne="027589838" autoriteSource="Sudoc" type="subdivisionDeSujet">Thérapeutique</tef:subdivision>
</tef:vedetteRameauNomCommun>
<tef:vedetteRameauNomCommun>
<tef:elementdEntree autoriteExterne="031386318" autoriteSource="Sudoc">Patients -- Coopération</tef:elementdEntree>
</tef:vedetteRameauNomCommun>
</tef:sujetRameau>
<dcterms:abstract xml:lang="fr">La thèse interroge la configuration des relations de soin au sein de l’hôpital et de la famille, à partir du cas d’enfants de 6 à 14 ans atteints d’un diabète de type 1. Ce travail s’attache à étudier, par une approche qualitative – fondée sur des entretiens semi-directifs et sur l’observation ethnographique –, la forme que prennent ces relations telles que co-construites avec les enfants, leur diversité et leur possibilité d’évolution dans le temps. Les relations de soin donnent à voir des rapports sociaux plus larges et parfois inégaux, notamment d’âges et de générations. En investiguant le rôle et l’action des divers acteurs impliqués dans ces deux arènes d’action, l’enquête vise à saisir plus finement les manières dont ces asymétries sont reproduites, « mises en pratique » dans les soins ou modifiées. En plaçant au centre de l’analyse l’agentivité des enfants, elle étudie les manières dont ceux-ci se saisissent de ces asymétries, les interprètent, y participent ou les subvertissent en se réappropriant leur corps et la maladie, en négociant en situation et avec une pluralité d’acteurs leur place dans les soins et les liens qu’ils entretiennent aux autres.</dcterms:abstract>
<dcterms:abstract xml:lang="en">This thesis investigates the configuration of care relationships within the hospital and the family, based on the cases of children aged 6 to 14 living with Type 1 diabetes. This works aims to study, through a qualitative approach – based on ethnographic observation and interviews – the form that these relationships take as co-constructed with children, their diversity, and their possibility of evolution over time. Care relationships reveal broader and sometimes unequal social relationships, especially of ages and generations. By investigating the role and action of the various actors invested in these two arenas of action, the study aims to gain a more detailed understanding of the ways in which these asymmetries are reproduced, “put into practice” in care practices, or modified. By placing children’s agency at the center of the analysis, it studies the ways in which children grasp, interpret, participate in or subvert these asymmetries by reappropriating their own bodies and their illness, by negotiating in situ and with a diversity of actors their place in care relationships and the links they maintain with others.</dcterms:abstract>
<dc:type>Electronic Thesis or Dissertation</dc:type>
<dc:type xsi:type="dcterms:DCMIType">Text</dc:type>
<dc:language xsi:type="dcterms:RFC3066">fr</dc:language>
</tef:thesisRecord>
</mets:xmlData>
</mets:mdWrap>
</mets:dmdSec>
<mets:dmdSec ID="ABES.STAR.THESE_183880.VERSION_COMPLETE.DESCRIPTION.EDITION_ARCHIVAGE">
<mets:mdWrap MDTYPE="OTHER" OTHERMDTYPE="tef_desc_edition">
<mets:xmlData>
<tef:edition>
<dcterms:medium xsi:type="dcterms:IMT">PDF</dcterms:medium>
<dcterms:extent>9829030</dcterms:extent>
<tef:editeur>
<tef:nom>Université de Strasbourg</tef:nom>
<tef:place>Strasbourg</tef:place>
</tef:editeur>
<dcterms:issued xsi:type="dcterms:W3CDTF">2022-12-31</dcterms:issued>
<dc:identifier xsi:type="dcterms:URI">https://theses.hal.science/tel-03685764</dc:identifier>
</tef:edition>
</mets:xmlData>
</mets:mdWrap>
</mets:dmdSec>
<mets:dmdSec ID="ABES.STAR.THESE_183880.VERSION_COMPLETE.DESCRIPTION.EDITION_1">
<mets:mdWrap MDTYPE="OTHER" OTHERMDTYPE="tef_desc_edition">
<mets:xmlData>
<tef:edition>
<dcterms:medium xsi:type="dcterms:IMT">application/pdf</dcterms:medium>
<dcterms:extent>9646555</dcterms:extent>
<dc:identifier xsi:type="dcterms:URI">https://publication-theses.unistra.fr/public/theses_doctorat/2021/bichet_lydie_2021_ED519.pdf</dc:identifier>
<dc:identifier xsi:type="dcterms:URI">http://www.theses.fr/2021STRAG034/abes</dc:identifier>
<dc:identifier xsi:type="dcterms:URI"/>
<dc:identifier xsi:type="dcterms:URI">https://theses.hal.science/tel-03685764</dc:identifier>
<dc:identifier xsi:type="dcterms:URI">https://theses.hal.science/tel-03685764</dc:identifier>
<dc:identifier xsi:type="dcterms:URI">https://theses.hal.science/tel-03685764</dc:identifier>
</tef:edition>
</mets:xmlData>
</mets:mdWrap>
</mets:dmdSec>
<mets:amdSec>
<mets:techMD ID="ABES.STAR.THESE_183880.ADMINISTRATION">
<mets:mdWrap MDTYPE="OTHER" OTHERMDTYPE="tef_admin_these">
<mets:xmlData>
<tef:thesisAdmin>
<tef:auteur>
<tef:nom>Bichet</tef:nom>
<tef:prenom>Lydie</tef:prenom>
<tef:dateNaissance>1990-06-21</tef:dateNaissance>
<tef:nationalite scheme="ISO-3166-1">FR</tef:nationalite>
<tef:autoriteExterne autoriteSource="Sudoc">25614589X</tef:autoriteExterne>
<tef:autoriteExterne autoriteSource="INE">0301010281N</tef:autoriteExterne>
<tef:autoriteExterne autoriteSource="CodeEtu">21410917</tef:autoriteExterne>
<tef:autoriteExterne autoriteSource="DiplomeSISE42">4200038</tef:autoriteExterne>
</tef:auteur>
<dc:identifier xsi:type="tef:nationalThesisPID">https://theses.fr/2021STRAG034</dc:identifier>
<dc:identifier xsi:type="tef:NNT">2021STRAG034</dc:identifier>
<dc:identifier xsi:type="tef:DOI">https://doi.org/10.70675/9284eff1z9b64z4bebz8048z21989adc5b4f</dc:identifier>
<dcterms:dateAccepted xsi:type="dcterms:W3CDTF">2021-11-23</dcterms:dateAccepted>
<tef:thesis.degree>
<tef:thesis.degree.discipline xml:lang="fr">Sociologie</tef:thesis.degree.discipline>
<tef:thesis.degree.grantor>
<tef:nom>Strasbourg</tef:nom>
<tef:autoriteExterne autoriteSource="Sudoc">131056549</tef:autoriteExterne>
</tef:thesis.degree.grantor>
<tef:thesis.degree.level>Doctorat</tef:thesis.degree.level>
<tef:thesis.degree.name xml:lang="fr">Docteur es</tef:thesis.degree.name>
</tef:thesis.degree>
<tef:theseSurTravaux>non</tef:theseSurTravaux>
<tef:avisJury>oui</tef:avisJury>
<tef:directeurThese>
<tef:nom>Diasio</tef:nom>
<tef:prenom>Nicoletta</tef:prenom>
<tef:autoriteInterne>MADS_DIRECTEUR_DE_THESE_1</tef:autoriteInterne>
<tef:autoriteExterne autoriteSource="Sudoc">050505548</tef:autoriteExterne>
</tef:directeurThese>
<tef:presidentJury>
<tef:nom>Vinel</tef:nom>
<tef:prenom>Virginie</tef:prenom>
<tef:autoriteInterne>MADS_PRESIDENT_DU_JURY</tef:autoriteInterne>
<tef:autoriteExterne autoriteSource="Sudoc">094616809</tef:autoriteExterne>
</tef:presidentJury>
<tef:membreJury>
<tef:nom>Mougel</tef:nom>
<tef:prenom>Sarra</tef:prenom>
<tef:autoriteInterne>MADS_MEMBRE_DU_JURY_1</tef:autoriteInterne>
<tef:autoriteExterne autoriteSource="Sudoc">125683936</tef:autoriteExterne>
</tef:membreJury>
<tef:membreJury>
<tef:nom>Neyrand</tef:nom>
<tef:prenom>Gérard</tef:prenom>
<tef:autoriteInterne>MADS_MEMBRE_DU_JURY_2</tef:autoriteInterne>
<tef:autoriteExterne autoriteSource="Sudoc">030181127</tef:autoriteExterne>
</tef:membreJury>
<tef:rapporteur>
<tef:nom>Calvez</tef:nom>
<tef:prenom>Marcel</tef:prenom>
<tef:autoriteInterne>MADS_RAPPORTEUR_1</tef:autoriteInterne>
<tef:autoriteExterne autoriteSource="Sudoc">03021050X</tef:autoriteExterne>
</tef:rapporteur>
<tef:rapporteur>
<tef:nom>Fortin</tef:nom>
<tef:prenom>Sylvie</tef:prenom>
<tef:autoriteInterne>MADS_RAPPORTEUR_2</tef:autoriteInterne>
<tef:autoriteExterne autoriteSource="Sudoc">177460342</tef:autoriteExterne>
</tef:rapporteur>
<tef:ecoleDoctorale>
<tef:nom>École doctorale Sciences humaines et sociales – Perspectives européennes (Strasbourg ; 2009-....)</tef:nom>
<tef:autoriteInterne>MADS_ECOLE_DOCTORALE_1</tef:autoriteInterne>
<tef:autoriteExterne autoriteSource="Annuaire des formations doctorales et des unités de recherche">519</tef:autoriteExterne>
<tef:autoriteExterne autoriteSource="Sudoc">156496216</tef:autoriteExterne>
</tef:ecoleDoctorale>
<tef:partenaireRecherche type="laboratoire">
<tef:nom>Dynamiques européennes (Strasbourg ; 2014-2021)</tef:nom>
<tef:autoriteInterne>MADS_PARTENAIRE_DE_RECHERCHE_1</tef:autoriteInterne>
<tef:autoriteExterne autoriteSource="Sudoc">184741912</tef:autoriteExterne>
<tef:autoriteExterne autoriteSource="labTEL">459133</tef:autoriteExterne>
</tef:partenaireRecherche>
<tef:oaiSetSpec>ddc:300</tef:oaiSetSpec>
<tef:MADSAuthority authorityID="MADS_DIRECTEUR_DE_THESE_1" type="personal">
<tef:personMADS>
<mads:namePart type="family">Diasio</mads:namePart>
<mads:namePart type="given">Nicoletta</mads:namePart>
</tef:personMADS>
</tef:MADSAuthority>
<tef:MADSAuthority authorityID="MADS_PRESIDENT_DU_JURY" type="personal">
<tef:personMADS>
<mads:namePart type="family">Vinel</mads:namePart>
<mads:namePart type="given">Virginie</mads:namePart>
</tef:personMADS>
</tef:MADSAuthority>
<tef:MADSAuthority authorityID="MADS_MEMBRE_DU_JURY_1" type="personal">
<tef:personMADS>
<mads:namePart type="family">Mougel</mads:namePart>
<mads:namePart type="given">Sarra</mads:namePart>
</tef:personMADS>
</tef:MADSAuthority>
<tef:MADSAuthority authorityID="MADS_MEMBRE_DU_JURY_2" type="personal">
<tef:personMADS>
<mads:namePart type="family">Neyrand</mads:namePart>
<mads:namePart type="given">Gérard</mads:namePart>
</tef:personMADS>
</tef:MADSAuthority>
<tef:MADSAuthority authorityID="MADS_RAPPORTEUR_1" type="personal">
<tef:personMADS>
<mads:namePart type="family">Calvez</mads:namePart>
<mads:namePart type="given">Marcel</mads:namePart>
</tef:personMADS>
</tef:MADSAuthority>
<tef:MADSAuthority authorityID="MADS_RAPPORTEUR_2" type="personal">
<tef:personMADS>
<mads:namePart type="family">Fortin</mads:namePart>
<mads:namePart type="given">Sylvie</mads:namePart>
</tef:personMADS>
</tef:MADSAuthority>
<tef:MADSAuthority authorityID="MADS_ECOLE_DOCTORALE_1" type="corporate">
<tef:personMADS>
<mads:namePart type="family">École doctorale Sciences humaines et sociales – Perspectives européennes (Strasbourg ; 2009-....)</mads:namePart>
</tef:personMADS>
</tef:MADSAuthority>
<tef:MADSAuthority authorityID="MADS_PARTENAIRE_DE_RECHERCHE_1" type="corporate">
<tef:personMADS>
<mads:namePart type="family">Dynamiques européennes (Strasbourg)</mads:namePart>
</tef:personMADS>
</tef:MADSAuthority>
</tef:thesisAdmin>
</mets:xmlData>
</mets:mdWrap>
</mets:techMD>
<mets:techMD ID="ABES.STAR.THESE_183880.VERSION_COMPLETE.EDITION_ARCHIVAGE.TECH_FICHIER.DOSSIER_1.DOSSIER_1.FICHIER_1">
<mets:mdWrap MDTYPE="OTHER" OTHERMDTYPE="tef_tech_fichier">
<mets:xmlData>
<tef:meta_fichier>
<tef:formatFichier>PDF</tef:formatFichier>
<tef:taille>9829030</tef:taille>
</tef:meta_fichier>
</mets:xmlData>
</mets:mdWrap>
</mets:techMD>
<mets:rightsMD ID="ABES.STAR.THESE_183880.DROITS_UNIVERSITE">
<mets:mdWrap MDTYPE="OTHER" OTHERMDTYPE="tef_droits_etablissement_these">
<mets:xmlData>
<metsRights:RightsDeclarationMD RIGHTSCATEGORY="CONTRACTUAL">
<metsRights:Context CONTEXTCLASS="GENERAL PUBLIC">
<metsRights:Permissions COPY="false" DELETE="false" DISPLAY="true" DUPLICATE="true" MODIFY="false" PRINT="true"/>
</metsRights:Context>
<metsRights:Context CONTEXTCLASS="INSTITUTIONAL AFFILIATE">
<metsRights:Permissions COPY="false" DELETE="false" DISPLAY="true" DUPLICATE="true" MODIFY="false" PRINT="true"/>
</metsRights:Context>
</metsRights:RightsDeclarationMD>
</mets:xmlData>
</mets:mdWrap>
</mets:rightsMD>
<mets:rightsMD ID="ABES.STAR.THESE_183880.DROITS_DOCTORANT">
<mets:mdWrap MDTYPE="OTHER" OTHERMDTYPE="tef_droits_auteur_these">
<mets:xmlData>
<metsRights:RightsDeclarationMD RIGHTSCATEGORY="CONTRACTUAL">
<metsRights:Context CONTEXTCLASS="GENERAL PUBLIC">
<metsRights:Permissions COPY="false" DELETE="false" DISPLAY="true" DUPLICATE="true" MODIFY="false" PRINT="true"/>
</metsRights:Context>
<metsRights:Context CONTEXTCLASS="INSTITUTIONAL AFFILIATE">
<metsRights:Permissions COPY="false" DELETE="false" DISPLAY="true" DUPLICATE="true" MODIFY="false" PRINT="true"/>
</metsRights:Context>
</metsRights:RightsDeclarationMD>
</mets:xmlData>
</mets:mdWrap>
</mets:rightsMD>
<mets:rightsMD ID="ABES.STAR.THESE_183880.VERSION_COMPLETE.DROITS">
<mets:mdWrap MDTYPE="OTHER" OTHERMDTYPE="tef_droits_version">
<mets:xmlData>
<metsRights:RightsDeclarationMD RIGHTSCATEGORY="CONTRACTUAL">
<metsRights:Context CONTEXTCLASS="GENERAL PUBLIC">
<metsRights:Permissions COPY="false" DELETE="false" DISPLAY="true" DUPLICATE="true" MODIFY="false" PRINT="true"/>
</metsRights:Context>
<metsRights:Context CONTEXTCLASS="INSTITUTIONAL AFFILIATE">
<metsRights:Permissions COPY="false" DELETE="false" DISPLAY="true" DUPLICATE="true" MODIFY="false" PRINT="true"/>
</metsRights:Context>
</metsRights:RightsDeclarationMD>
</mets:xmlData>
</mets:mdWrap>
</mets:rightsMD>
</mets:amdSec>
<mets:fileSec>
<mets:fileGrp ID="ABES.STAR.THESE_183880.VERSION_COMPLETE.EDITION_ARCHIVAGE.FILEGRP" USE="archive">
<mets:file ADMID="ABES.STAR.THESE_183880.VERSION_COMPLETE.EDITION_ARCHIVAGE.TECH_FICHIER.DOSSIER_1.DOSSIER_1.FICHIER_1" ID="ABES.STAR.THESE_183880.VERSION_COMPLETE.EDITION_ARCHIVAGE.DOSSIER_1.DOSSIER_1.FICHIER_1" SEQ="1">
<mets:FLocat LOCTYPE="URL" xlink:href="STRA/THESE_183880/document/0/0/bichet_lydie_2021_ED519_A.pdf"/>
</mets:file>
</mets:fileGrp>
</mets:fileSec>
<mets:structMap TYPE="logical">
<mets:div ADMID="ABES.STAR.THESE_183880.ADMINISTRATION ABES.STAR.THESE_183880.DROITS_UNIVERSITE ABES.STAR.THESE_183880.DROITS_DOCTORANT" CONTENTIDS="CONTENTIDS.ABES.STAR.THESE_183880" DMDID="ABES.STAR.THESE_183880.DESCRIPTION_BIBLIOGRAPHIQUE" TYPE="THESE">
<mets:div ADMID="ABES.STAR.THESE_183880.VERSION_COMPLETE.DROITS" CONTENTIDS="CONTENTIDS.ABES.STAR.THESE_183880.ABES.STAR.THESE_183880.VERSION_COMPLETE" TYPE="VERSION_COMPLETE">
<mets:div CONTENTIDS="CONTENTIDS.ABES.STAR.THESE_183880.VERSION_COMPLETE.EDITION_ARCHIVAGE" DMDID="ABES.STAR.THESE_183880.VERSION_COMPLETE.DESCRIPTION.EDITION_ARCHIVAGE" TYPE="EDITION">
<mets:fptr FILEID="ABES.STAR.THESE_183880.VERSION_COMPLETE.EDITION_ARCHIVAGE.FILEGRP"/>
</mets:div>
<mets:div CONTENTIDS="CONTENTIDS.ABES.STAR.THESE_183880.VERSION_COMPLETE.EDITION_1" DMDID="ABES.STAR.THESE_183880.VERSION_COMPLETE.DESCRIPTION.EDITION_1" TYPE="EDITION"/>
</mets:div>
</mets:div>
</mets:structMap>
</mets:mets>