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<dc:title xml:lang="fr">Conséquences de la pandémie de COVID-19 sur la mortalité, les parcours de soins et d’accompagnement de personnes en situation de handicap : l’exemple de trois pathologies invalidantes</dc:title>
<dcterms:alternative xml:lang="en">Impact of the COVID-19 pandemic on mortality, care, and support pathways for people with disabilities : the case of three disabling conditions</dcterms:alternative>
<dc:subject xml:lang="fr">Covid-19</dc:subject>
<dc:subject xml:lang="fr">Parcours de soins et d’accompagnement</dc:subject>
<dc:subject xml:lang="fr">Mortalité</dc:subject>
<dc:subject xml:lang="fr">Santé</dc:subject>
<dc:subject xml:lang="fr">Handicap</dc:subject>
<dc:subject xml:lang="fr">Trajectoires</dc:subject>
<dc:subject xml:lang="fr">Autonomie</dc:subject>
<dc:subject xml:lang="fr">Lésion médullaire</dc:subject>
<dc:subject xml:lang="fr">Sclérose en plaques</dc:subject>
<dc:subject xml:lang="fr">Troubles psychiques sévères et persistants</dc:subject>
<dc:subject xml:lang="en">Covid-19</dc:subject>
<dc:subject xml:lang="en">Care and support pathways</dc:subject>
<dc:subject xml:lang="en">Mortality</dc:subject>
<dc:subject xml:lang="en">Health</dc:subject>
<dc:subject xml:lang="en">Disability</dc:subject>
<dc:subject xml:lang="en">Trajectories</dc:subject>
<dc:subject xml:lang="en">Autonomy</dc:subject>
<dc:subject xml:lang="en">Spinal cord injury</dc:subject>
<dc:subject xml:lang="en">Multiple sclerosis</dc:subject>
<dc:subject xml:lang="en">Severe and persistent mental disorders</dc:subject>
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<tef:elementdEntree autoriteExterne="171379489" autoriteSource="Sudoc">Renoncement aux soins</tef:elementdEntree>
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<tef:elementdEntree autoriteExterne="24359934X" autoriteSource="Sudoc">Covid-19</tef:elementdEntree>
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<dcterms:abstract xml:lang="fr">La pandémie de COVID-19 a entraîné des conséquences sanitaires inédites. Le système de soins s’est rapidement retrouvé submergé par les patients et des réorganisations ont été nécessaires pour les prendre en charge. Le recours aux soins pour d’autres causes que l’infection a alors été interrompu ou reporté. Les mesures de restriction mises en place ont participé à accroître ces difficultés et ont également eu un effet délétère sur l’accompagnement par des professionnels ou des proches. En s’appuyant sur des méthodes qualitatives et quantitatives ainsi que deux sources de données complémentaires, cette thèse s’attache à décrire les trajectoires de soins et d’accompagnement ainsi que la mortalité, pour trois populations spécifiques. Cela permet d’identifier les changements qui ont eu lieu pendant la pandémie et leurs conséquences à court ou moyen terme. Au-delà des résultats, l’objectif est de présenter une méthodologie reproductible pour d’autres populations.</dcterms:abstract>
<dcterms:abstract xml:lang="en">The COVID-19 pandemic had unprecedented health consequences. The health care system was quickly overwhelmed by patients and had to be reorganized. Treatment for other causes was then interrupted or postponed. The restrictions imposed have increased to these difficulties and had a detrimental effect on the support provided by professionals or relatives. Using qualitative and quantitative methods and two complementary data sources, this thesis aims to describe care and support trajectories, as well as mortality, for three specific populations. This will allow us to identify the changes that may have occurred during the pandemic and their short- and medium-term consequences. Beyond the results, the aim is to present a reproducible methodology for other populations.</dcterms:abstract>
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